420: 10 Things Not to Say or Do When I am Sad

10 Things Not to Say or Do When I am Sad

1. Don’t ask me to explain or reason my way out. When I am sad I have already evaluated everything ‘to death.’ I have looked at the pros and cons of my own life and my own suffering. I am no dummy. In fact, part of the problem I am so sad, is because I am so dang smart. I am my worst criticizer and have evaluated all the benefits of not being sad verses being happy a thousand times, and the worst part is that I cannot reason myself out of the sadness and feel happy.

2. Don’t tell me I need a pharmaceutical drug. Chances are, I’ve done my research or tried the drug before. My body is so very sensitive that any chemicals I put into my body cause adverse reactions. I get the so called ‘side effects.’ I am that less than 1%. I am the canary in the coalmine. I am the one you read about that gets the suicidal thoughts from anti-depressants and the one that has bizarre things happening to her body when I ingest foreign substances. I am already affected by the environmental pollutants, the toxins in our water and food, the hormones injected into products, and the chemicals that seep out of most homes. Truth is, I likely would be far happier if I lived in a world that didn’t reek of destruction.

3. Don’t tell me you know the reason for my sadness. More than likely, if it’s not my PMS or PMDD, or the result of an auto-immune disorder, or a variant enzyme, an allergic reaction, a virus or illness, or something or another that is deficient or out of whack, perhaps in my intestines or stomach, then it is situational. And not just the typical situations, like a bad day at work or a letdown. I have learned not to let ‘bad’ days affect me. I have ‘bad’ moments, each and every hour, I have ‘bad’ moments, and I choose to spend my day grasping onto the light and the goodness of the day. Only sometimes, I get tired of reaching and trying. My life is a struggle to fit in, to appear ‘normal,’ to follow the ‘rules,’ to even understand the ‘rules.’ I am exhausted. I am a warrior who wakes up every day with the past day erased, all the previous trials conquered gone, all the accomplishes vanished, and I have to start from square one to try to make sense of a world in which I do not feel I belong.

4. Don’t give me advice. You have no advice I have not heard, read, seen, felt, or experienced. One way or another I have studied what you will say. I have studied emotions and reactions in films, in music, in literature, even in nonsensical jokes and in animal behavior. I understand emotions and I understand my sadness. I read to understand myself and I even study you to understand myself. I know more than you think. I may not know the root cause, but I know that there isn’t an answer you have that I don’t have within myself. Your suggestions of correct verbiage, positive thoughts, rest, fresh air, exercise, meditation, visualization, diet, supplements, and the lot, do nothing more than boggle my brain and make me think you care more about your role as a want-to-be helper than you do about my pain. I can’t be the object of your fixing. I don’t want to be and refuse to take on that role. I am not less than you in my sadness and you do not have the secret key I need. I did not express I was sad because I look to you for answers. I told you of my sorrow because I just long to feel less alone.

5. Don’t tell me what I have to be grateful for. Don’t suggest I make a list. That is crap. To me I am grateful for the tiniest of thoughts, gifts, and actions that most people take advantage of. The near site of the dew of the grass, the soft smell of the fire-painted lily, the brilliance of a child’s laugh, the comfort of my favorite blanket, or favorite song..all these lift me. So much of the world lifts me. Many moments I travel in a world so extraordinary and filled with magic that I thank life for just my essence, to just to be in the midst of such glory. My list of gratefulness is not divided by good things or bad things. I stopped judging the right from wrong, and the just from the unjust, a long time ago. I live in the space in between the extremes of yes and no, and laugh at the ones who think their view is the only view. I can’t see making a list of all that is good without classifying at the same time in invisible ink what is bad, or worse, what others are lacking. I am no less and no more grateful than the homeless man on the street. If he is happy, I am happy. If he is sad, I am sad. To even make a list seems to me pompous and unjust, to single out how lucky I am in such a world of misfortune makes no sense, unless I hold greed as a virtue. Unless I see myself as dutifully worthy based on my profiting and others’ lacking. Unless I single out what is entirely missing from another to satisfy my own growing need for satisfaction. And anything of material I would attempt to scribe as benefit, I would rather break apart into a thousand pieces and feed the world. I don’t believe I can classify what happens in my life as good, bad, tragic, ugly, or beautiful. I only know it happens, and is happening. And for what reason is still to be seen. I know to let go and let my higher source lead. But when I am very, very sad, sometimes I forget how to release; I forget how to let go of the clinging of suffering. I forget I am not alone onto myself.

6. Don’t tell me how wonderful I am. I know who I am. I know through and through. I know I am kind, gentle, sweet, generous, forgiving, genuine, giving, smart, keen, and many other positive attributes. I am not sad because I have lost sight of why I am enough. I know I am enough. I am sad because the world has lost sight of me. Because I long to reach out and connect but when I do, I often feel nothing reaching back. To touch another fully, is all I want. To touch in full extreme, without pretention, want, need, expectation, goal, or outcome. To just touch. I, as I wait in my own self-created exile, as I wait without the sense of feeling another, grow in sadness.

7. Don’t tell me ‘this too shall pass.’ I know the sayings and tons of other random words collected to form reprieve. I am an avid reader and collector of quotes. I am a philosopher, an artist, a creator. I have the heart of a lover, the mind of a composer, and the spirit of a warrior. I am brilliant in my creation, and I understand the ebbs and flows of life. I move like the sea with the moon. I move like the willow with the wind. I am affected by the give and take of the world, by nature, by weather, by other people, events, and tragedy. I dream things. I see things. I experience emotions in extremes, and sometimes cannot tell if I am carrying my own pain or the pain of another. People find me. I don’t know how, but they do. And I am a vessel of sorts, harboring the lonely through the storm. They crawl in with their tears and woes, and their aches leak through me, crushing me to the core. I know everything will pass. And I know still that life is a cycle, and like the seasons, my sorrow will come again. Do not attempt to help me to look forward to the end of my pain, help me to go through my pain.

8. Don’t criticize or mock me. I cannot help how I am. Do not call me ‘overboard,’ ‘too much,’ ‘too intense,’ or the like. I cannot help that I am the way I am. I can often control my behaviors and be the best person I can be, and I do this daily. But my emotions sometimes take over. I don’t know how or why, beyond conjecture, but they do. And the more I fight the wave of pain, the more the pain comes. Sometimes I need to submit. To be in the turmoil, so that the tunnel evaporates and the light comes again. I fret over the tiniest of perceived imperfections in the way I treat others. I judge myself for not being caring enough, attentive enough, or loving enough. I cannot lie without deep remorse. I cannot have enemies. I cannot even hate. I know not this emotion hate beyond the emotion of anger turned deep sadness. All is huge to me. There isn’t a small suffering. I hurt for the tiny spider as much as the buffalo. I long for the rescue of the persecuted innocent as much as the child without parent. I feel and take in such extreme happenings, and know not where to lay my burden down. Just as I spend all day, moment to moment, contemplating how to maneuver in a world that remains unfamiliar, I spend my inches of time trying to figure out how to again release my burden, where this time to bury my woe. Shall it be in words, in rhythm, in rhyme, in the deep wilderness real or the serenity of my imaginations? Will I get lost again in my escaping? Where shall I take this misery and when will I have my fill? Do not criticize me and do not tease me. Do not laugh or giggle your way into a stream of mockery aimed at me. I do not do what I do for attention or purpose. I do not do what I do because I want to. I do not do what I do because I am confused or made wrong. I am perfect in my being. I am just sad. I am sad. I am sad.

9. Don’t abandon me. Do not leave my side, if I need you there. Do not hang up the phone, if I am crying. Do not say you will return, and then not call. Don’t say something, and not mean it. Don’t lie to try to make me feel better. Tell me straight what you think. You covering up only makes things worse. The world is already unsafe with its lies and trickery. I need you to be safe. I need your word to be strong. I need your integrity, your honesty, your truth. I need you to be that light that I am, to prove to me again you are here and I am not alone. If you do this, if you are loyal and true, when my sadness goes, when it is lifted, I shall be at your side with the beauty I am, pleasing you in your times of suffering, and holding your hand in your deepest need.

10. Don’t perceive me as something I am not. Try not to label me. To find the answer that brings you closure. It is not my job in life to fit neatly in a box for your comfort. My moods are my moods, my pain, my pain. My emotion is not a reflection of you, nor a product of you, any more than my happiness. I don’t expect anything of you in your pain and sorrow, so please don’t expect anything of me. Don’t make me your martyr, your angel, or your giving-spirit. Don’t make me the melancholic one or the hopeless creature. I am what I am, and what you create of me is neither here nor there, no less truth than what I create. I need you to try to not see me through the eyes of fear, but through the eyes of love. To bathe me in acceptance and forgiveness. To love me enough in my completion that you in turn love yourself in completion. If you can do that, if you can look past my ‘flaws,’ past the definition and existence of ‘flaws,’ and see into my suffering the very spirit reborn into darkness, soon to be sprung into light, then I shall have hope. If I can see me as hope, I will be hope. If you can hold me as hope, I shall be the very essence that you perceive in your grasp. And we can meet there, in that space between the suffering and hope, and merge, per chance, in that shimmer of a second, as one.

418: Carved Out

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To read about this image, visit my other blog Belly of a Star.

A spiral of question upon question. Answers seeping out and morphing into more queries. Butterflies that burst, each birthing from a singular, a thousand more flutters; and my mind, this tiny hook to stringed-wing, traveling into a symphony of thoughts.

How I long to be understood. To be held under the stars, in a world, where as hard as I try, I cannot connect. In a world where to be loved fully, is to lose my sense of self in the process.

To live in anguish of ever-present disappointment, pleasure turned agony, and extreme isolation or to give up this sense of self, love the All, and dedicate my life to service.

There appears no middle road.

Abandoned, let down onto myself, and then lifted up above myself. Loving bliss or extreme suffering; while the rest, in form or belief, seem to sleep in a twisted agony of their own.

The one dedicating herself to help the other, when her own self remains in dismal suffering. The one dedicating himself to a cause, when his own ability to feel and be is sacrificed.

If I am not a ‘self,’ then why would I want to be what I am not? And if I am not, then what am I to be?

The souls thinking themselves following or leading; thinking too, the sign shall come. Stepping untied alone into an illusion of nowhere, hoping to find the no one.

To sacrifice my very humanness, the quest dismissed, for universal peace. To circumvent my hollowed out self of sadness and fill it with a layering of illusion undone. Poured into the divine, into God and Goddess form, and perpetually served, sacrificed. All desire dissipated for the All.

Momentarily safe, momentarily comforted, momentarily brought out of self and back through self, and afforded the moments to blend in with the universe. The trees alive. Angel kisses. As walking ghost, carved, in this mystery undone and hidden before the finish.

I am a foreshadowing of future chapters. The ones in which I turn the pages to discover I am back on some island onto myself; victim of nothingness, grander within the nothingness of am, than the world appears in the everything of naught.

Lost in the exact canvas of eternity created through the concept and thoughts of eternity. No self creating no self, until self emerges and claims self again. Spinning in recognition of circle, defined within circle. Parts dismissed and whole returned, and whole dissected into pieces.

Onto my self, I awaken as the dreamer, and then fall asleep twice over, to awaken to the un-free one; cycling through.

Longing for the flesh and flesh alone, the timeless one to fill me complete in his coming. Longing for the one star that can see me.

To bring another one to the one I am not.

Split and made. Two becoming the unified. Split into the two again. The one splattered across the other; neither satisfied and both smothered.

How I long for rescue, as two lay clasped and connected, gasping for the breath of wisdom.

How I long for a hand to be the hand. How I long to know, to no longer be in this me. To hear the whispers behind another soul, a very spirit split open and dispersed and fed to me. No pretty fool. No ugly beast, yet secretly tucked away in between the points of eternity.

To move is to cause the other to shift. To sit is to risk falling, again and again, into the deep of nowhere.

To suffer in this humanness perchance to create the one hand I reach for that is reaching for me.

To suffer in the aftermath of bliss to connect in the river of pain.

Or to bleed out every last sense of me, and become blended in the peace of nothingness.

374: Moments

“It is not that I am not present in the here and now; it is that I am so entirely present to the universe that I become intoxicated in possibilities and rapture, and self must retreat back to the echoes of my imagination in order to breathe.” ~ Sam, Everyday Aspergers

Moments

The moment when you know you’ve spoken your complete truth, whether it was a word or thought, and you sift through what you said, wanting to make sure there isn’t the splinter of doubt that you didn’t indicate anything other than truth, and you feel your stomach twist, because maybe, just maybe, somewhere inside of you, you were wrong.

The moment you speak your truth loudly and clearly, with extreme empathy and knowing, weighing the validity of your words with the interpretation of necessity, while fighting back the voices that analyze and dissect the coming unspoken that is surging its way out through your veins, as you question your need, your want, your intention, wondering if the silence will win out over the pulsating necessity to share.

The moment you risk for the higher good, knowing if you speak your mind that you shall be persecuted, ostracized, and judged, but knowing all the greater that you shall in speaking your light have conquered the darkness, at least a splinter of the darkness that permeates your world.

The moment you lie, only to protect the feelings of another, and you replay the falsehood over and over in your mind, a broken record that hurts your ears and leaves you suffering, not for the sake of another, but for the sake of going against your own self and truth, as you wonder if a better course could have been detected, discovered, and executed, something beyond the distasteful torture of falsehood.

The moment you realize no one has the answers, no book, no preacher, no teacher, no guru, absolutely no one, and that all of your efforts have led you back to self; only now you are carrying a giant book of something that resembles truth, but in actuality it is a drafted, desperately edited and marked up tablet stack of contrived and siphoned rules, many of which contradict, point fingers, and leave in the ring either victim or prideful one.

The moment you speak your truth and the others leave, except perhaps one that stays for analysis and judgment, or to set you straight; and you listen, trying your best to look like you are interested and are learning, as you bleed all over the sidewalk from the bitter and deceptive words, your heart only wanting love, acknowledgment, and acceptance, not to be told again how you don’t fit in, don’t have a right, or don’t understand.

The moment you realize you understand more about a topic than anyone in the entire room, but to say so would immediately set up barbwire fences of division; thusly, you keep quiet and nod, trying to ignore and not comprehend the analogies that go against the base foundations of truth, justice, and love, with your last hope being that someone, somewhere in the room is like you, sees the light in your eyes, and wishes to not push his belief system upon you, or prove to you his theory, or embrace you in his way of life, but only enters your space to welcome you unconditionally as another being of substance.

The moment you dial up a conversation, and with first word, the person on the other end begins the game, following the rules of conduct and behavior and asking you blank, empty questions, not caring, unattached, unwilling to connect or even listen, the shallowness of the encounter physically hurting your chest and making your heart weep, as you attempt to move through with your life-preservers of nodding and smiling, acting as if you are comfortable, while feeling the energy of the speaker pierce you like daggers: the tone of the voice, the inflection, the pauses, the drawn out non-silence that does not match who she is, what she is, and where she is going. You are merely a dancer in some line of communication, knowing not where to step or when to pause, trying not to step on toes, and staring at a blank empty face, whose only need is to check your name off of her list.

The moment the sun rises and your breath is taking away and you are dancing in the rays, your heart free, your child like nature set to the wind, spinning, leaping, abounding in spirit, without moving in inch; and wanting to share this experience, to share the opportunity of hope you see in nature, and in the dawning of a new day, you giddily laugh and celebrate and raise the arms to the magenta skies; only to discover the persons surrounding you can’t sense what you sense; and you think somehow you are made wrong, too attached, too intuitive, too knowing. And so comes the feeling of separation, the sun’s hues shifted, the day begun, with you lost to self, trapped within thought of why your way is not their way, and why your way is left out of the equation.

The moment you kiss another and you wonder what the kiss means, because it has to mean something; and you question how two could connect without connecting, touch without touching, and how the game of romance is only a game, marked with pitfalls and dungeons and war. How you have instinctively set up camp upon another’s territory and in so doing have been given a safe zone, in which you shall not tread outward; for in stepping out, you risk annihilation, alienation, and doom. You weren’t meant to spread across his land and place flags of declaration about your feelings or experience. You were built for silent torture as you sit spinning in your small space of reason wanting to scream out the ecstasy and dynamic shift of being, but forced to crease your edges, sew your own self shut and hide out until the coast is clear, or the being you so loved, simply slips away.

The moment you want to be present, but you can’t; and the guilt settles in as friend or child, spouse or son, he looks at you with wide open eyes ready to connect at his level, in a place of happiness and delight, without deep thoughts, without theories and strings of reason, without doubt, without prospect of future circumstances; and how you sit in this passing moment, longing to reach out and be this same way, to stop the clock of the own mind and silence the tick-tick-ticking; and so you pretend, you try, you harbor your very own secrets of misery; a false grin, a false laugh, an intense glance, all means in which you try to give back and let the other know he is loved and needed, even as your brain radiates outward, living in an imaginary land, pulling you back to a place so distant that all connection, all being is lost in a blink of letting go. To speak and be present, like the other, is to balance on the plank, with the sharks below, knowing without fail, you shall fall with a splash, that your eyes shall dim, your mind blank out, and you shall undoubtedly sink into the dark and murky depths, embracing the emptiness and cold, where once the potentiality for sharing, an open beckoning space with dear one, existed.

The moment you know you are different and you celebrate the uniqueness knowing you have a purpose and a bright light and that you will make a change in the world for the betterment; perhaps you feel enlightened, like a teacher or creator of beauty, or even like a semi-saint; but to speak this to the world would be the death of you, for others would claim you are self-centered, grandiose in thought, or egotistical; but you know deep down you are meant for greatness, even as you walk in a world that seemingly does nothing but dilute your own fuel to your own fire. You are passion, you are insight, you are intuition, and you are connected to the grand scheme of life; but to say so leaves you breathless and unsure of yourself, dipped in the pool of humility time and time again, only to be told you are wrong.

The moment you understand that you are only a perception of what people think of you, and that no matter what you say or how you get your point across that no one will see you other than how they choose to see you; that ultimately you are an island onto yourself with tourists that caravan by and wave but never set foot onto your sands. And so you stand, unmoving, shining your light, wishing upon the star, that feels more liken to friend than any other being you know, waiting for the day, when a brave one will enter, and join hands to the infinite beauty of you combined.

The moment you realize you are no one, but you are supposed to walk in the world as someone, a someone who acts a certain way, dresses a certain way, expects certain things; but you no longer expect anything and no longer know how to act, and stand on this endless stage watching the ones garbed in their costumes, refinery and fancy ways, and wonder where you are to stand, how you are to observe, and what you are to take in, if not the bewildered stares of stagehands, whom keep pointing and staring at your indecent and unpredictable ways. Where to walk. Where to move. Where to be—each become your questions, as the world moves onward to a beat you cannot hear and do not wish to hear.

The moment you realize you do not have a condition or a syndrome or a fault, but understand intensely people are trying to make you believe you do, trying so hard that they convince themselves they are this illusion of normal, and you are this jumbled mess of faults; only you see the truth. Your blinders have been removed. You march in the silence, the one not dictated and orchestrated by the misers controlling the masses. Your eyes have been made open. In essence you have been reprogrammed, the barrier of righteousness, to shine the light on falsehoods and bring out the truth; yet, no one knows this but the few others that see in truth; and thusly, you move forward half-blinded in lies and half-open to truth, stuck in a place of limbo, with something beyond the beyond, urging you forward through the life that seems not life.

The moment your hands hurt, your feet hurt, your eyes hurt, your heart hurts, but you can’t stop, because there is a force inside of you that burns so deeply that if you do not open the crevice to creativity and let the flames burst out, as dragon releasing delicate-rage, then you shall perish in your own internal war. And so you move, in whatever way called to move; your own self bleeding in the efforts, your own self lost in the time without time, sinking into the separate land where no one can see you move with the freedom of angels, and you cannot see where this world was that you were made to walk in. And here you breathe, inside the escape of freedom, where the others cannot reach in and pull you out, cannot shape you and make you, and tell you lies of whom you be and whom you are not. A place of refuge where you can meet your own maker, whether self, universe, or God, and sit there in your trembling awe.

The moment you can no longer stand being you, as the music never stops, the thoughts never linger, but leap and bound across eternity, bringing up the genius of the world and making you into a spinning top of fury-making; when even the sound of the silence singes your ears and stops your heart, so that you want to scream at the annoyance of the drumming universe, though none around you can hear the pounding. And you cringe and cry and rant and plead, exploding inward as much as outward; for you have been placed in a merry-go-round of havoc with blind-seekers, each dumb and deaf, and wishing you were something other than your own self. And you have no way, no thread, no line of communication in which you can explain how you are the one displaced, removed from where you belong, and brought down to be tortured by the nonsense. How you have all the answers within, but are continually haunted and stopped in your making and doing, when the others, who know you not, shun and persecute your actions. Can they not see you are only trying to be, and that the more they stomp on your beingness the more they push you back into the dungeon of no recourse but explosion? Why do they force their ways upon you, when they, in their infinite blindness, know not what they do.

The moment you recognize you are not alone, that there is at least one other person like you on the planet, and you recognize their heart, their purity, and their need to make a difference; and in seeing her fully, you fill her with hope, because she knows at last you believe her and you trust her; because, contrary to what she has been told, she is not pretending to be kind, she is not pretending to be generous, nor is she pretending to love. She does love you, with all of her being, with all of her heart. And like your lonely, forlorn and forsaken self, you long to scoop her up and paint her in your compassion and security, to blanket her in your own goodness, and let her know she is this thing called beauty; she is this joyous light.

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(I wrote and pulished the post 373 (Semi-Saint) yesterday, knowing I might receive some backlash and that some individuals would choose to stop following my blog. I had a choice: to be authentic or to pretend. Today I understand that I needed to feel the suffering of rejection and judgment, in order to feel humbled, and to feel the collective pain of isolation. As odd as this seems, I need the suffering. I need to be connected to the others that still hurt. I don’t want to feel healed and complete (yet); and it seems at this moment, I cannot feel healed and complete, until every last brother and sister feels loved and accepted. For how can I walk in this world in a state of contentment, when all about me I see suffering? I know there is a way; I know I will realize this. A way to love my neighbor intensely without feeling his suffering, but I have yet to find it; and so I choose to walk beside the pain, until He has taught me all I need to see.)

357: My Pain Conditions

I don’t often talk or write about my physical pain, mostly because pain does not define me as a person. Currently, I have several pain conditions. I suffer more in the winter months and do amazingly well in the summer. Sometimes I can get hit with flare ups from multiple conditions all at the same time, typically around my womanly cycle. That was this last weekend, and yes, that was basically hell.

The pain is not so intense that I require pain killers to function. In fact, I usually only take one over-the-counter pain killer (Tylenol) once or twice a month. I save those beauties for the super tough days. But the pain is always with me; it doesn’t go away.

In doing research about hyper-joint mobility syndrome (closely related to EDS, if not the same?) I discovered it is not uncommon for people with this type of condition to have extreme fatigue by mid-afternoon. That is me for certain. Each day at about four in the afternoon, I am ready to settle on the couch. If I sit, in the latter part of the day, then I will have a difficult time getting back up. Sometimes I have to move all day, e.g., standing, walking, cleaning, errands, etc. because more often than not, as soon as I wind down and take a rest, I won’t be able to move much anymore. That’s why I am prone to spend one or two days a month doing massive non-stop cleanings of the house. It’s the only way I can do housework: all or nothing. Housecleaning itself usually sets me back two to three days in intensified pain, but manageable.

When I take my three to five-mile walks, most days in the summer, and a few times a week in the winter, I am fighting through the pain. Pain in my knee joints, hips, and sometimes back. When I say, “I am taking a walk,” it means a lot more to me than just a walk. Forcing myself out the door means forcing myself through the pain.

Simple tasks, like opening a lid on a jar, bending to retrieve something from the floor, or walking up and down stairs, hurt. I don’t loosen up and feel better after stretches. Stretches actually make me feel worse. My pain feels very much like what I imagine a person would feel after he or she hiked ten miles up hill. It is an all over, generalized body-ache. Sometimes I feel like I took a huge fall or was run over by a thousand little trolls. There are also specific areas in my body that flare up, in the sense it hurts more. I don’t actually swell or get red in areas. Flare ups usually happen in my wrists, fingers, elbows, hips, spine, neck, knees, etc. I am sure I am leaving out some area, but you get the picture. The flare ups feel like a dull ache, not severely painful like a tooth ache, just painful enough that sitting here now, as I type it feels like parts of me are throbbing and/or burning.

I am thankful I can go through my days and still function. I can climb stairs with ease, despite the pain. I can clean. I can walk. I can drive. Somethings that are more jolting on my muscles are actually dangerous for me, as I never completely heal from injuries, and actually develop something similar to scar tissue where the collagen should be healing. Thusly, I still feel the three times I suffered whiplash from car accidents, the time I took a hard fall and landed on my left shoulder, and the time a glass-framed painting fell off the fireplace mantel and landed on me. Those pains won’t ever completely go away.

My children are used to seeing me on the couch. It’s what they have grown up with. What they know as familiar. It’s one of the reasons I find so much time to write. Fortunately, when I write, I can escape my body from time to time. I think my pain is one of the reasons it is hard for me to practice being in the present moment. I am fairly certain that the combination of sensory (bombardment) challenges, Post-Traumatic-Stress Syndrome, and constant pain, make it difficult for me to want to be present.

I wake up several times a night during the harder days, usually from the hip pain. I have to shift my body a bit, and then I am able to fall back to sleep. I consider myself fortunate. I fall asleep easily at a reasonable time of night and stay asleep for the most part. However, part of the reason I fall asleep is because I am utterly exhausted from doing relatively little all day. Just sitting on the couch hurts.

I maintain a fairly good disposition. As much as I hated hearing my mother repeatedly tell me that “Things could be worse,” when I was growing up, it is true, they could be. I do have some almost pain-free days. And on those days, I can truly appreciate the beauty of just being. And on my high-pain days, the longest stretch usually lasting five days, I can remind myself, or ask my husband to remind me, that this too shall pass.

I don’t worry too much about the future. My pain has been pretty stable; in other words, I have felt this crappy for about fifteen years and the crappiness hasn’t increased, at least.

I know NEVER to run; even a short fast sprint to catch my dog will result in body pain for several days. A tumble or a fall might keep me down for a week. And the only “minor” surgery I ever had, a small laproscopic “scraping” for endometriosis, took me a year to heal from. It should have taken two days. And, yes, I still feel the pain there, likely scar tissue that never will heal.

I am super thankful I listened to my angels about six years ago. I was scheduled for a full hysterectomy. I had the operation date, and was already setting up childcare when I heard a distinct and audible: “No.” I can’t imagine what would have happened if I had the surgery. I don’t think I would have ever been the same. If minor surgery took me a year to heal from, what would major surgery have caused? Plus, my acupuncturist at the time, a healer I still see when I travel to California, she gently had offered: “I would not take out any part of a body unless it was a life threatening condition.” In other words: keep all your parts as long as you can.

I think sometimes I accept my pain conditions too much, to the point I practically forget. I get super down on myself for not being able to get up and go, to run out the door and go toss a ball or shoot some hoops. Like other things in life, I sometimes long to be “typical.”

Sometimes I make a sacrifice and will do something I know will cause me days of pain, like painting or roller skating, riding a roller coaster, chasing my son, or climbing hills. Sometimes the sacrifice is very much worth it!

The pain has been a gift in many ways. Like I said, I appreciate the days of less pain. And the days of almost no pain are like heaven. And I have been able to spend valuable time with my children. If I didn’t have this pain condition, I dont think I would have left my teaching job (I am disabled.), because I loved teaching and brought income home for the family. If I was still teaching, I would not have been afforded the opportunity to be a stay-at-home mom and to homeschool my middle-son with Aspergers.

Because of my experience, I have gained empathy for those in physical pain and/or with chronic fatigue. And I have gained a remarkable awareness regarding my own body and my needs.

I also am blessed with a patient husband who never complains when I am down. And I get to experience his love demonstrated through service and support. I have seen miracles, too. Like this last month, when I drove over 1600 miles, in a few days time, and experienced little to no risidule pain. I kept asking my angels to relax my body and heal me. And when I do my automatic writing, much of my pain disappears, too.

I don’t know why I live a life with physical pain, anymore than I know why I experienced a difficult childhood or why I have Aspergers. I do know that all my challenges have made me a stronger and a more loving person. I know that I am capable of extreme empathy, because in this short life I have experienced so very much. And perhaps that is my gift: how my suffering enables me to love more fully and to connect more freely.

I cannot imagine my life any different. If one day my pain goes away, I am sure I will be delighted; but in the meanwhile, I am so happy that I know how to choose contentment over victimhood. And I am thankful that I recognize my pain is not who I am.

I wrote this post because there are other people who experience pain syndromes, and I want them to know I understand. And because I wanted to share a little bit more about my journey.

I think we all have special gifts to share with the world, and that if we can turn our trials into compassion for self and others, then we have already accomplished so very much.

In closing, I believe there is a reason for my life. I believe we have each been called to service and each given the tools necessary to answer our calling. For me, one tool in particular has been the continual humbling of spirit. I thank my pain for reminding me of my fragility and humaness, and for bringing me that much closer to reliance on something higher than self.

Diagnosed with:
Fibromyalgia
Chronic Fatigue
IBS
Endometriosis
Fibroids
Hyper-joint mobility syndrome
Lyme Disease (The test has an over 60% fail rate. The test results were questionnable; the doctor based this diagnosis on ongoing symptoms. I tend to think I don’t have this, though, and my pain is a result of the above conditions.)

Self-Diagnosed:
PMDD

Perhaps I have?
Classic Ehlers-Danlos syndrome (I haven’t been diagnosed with this, but it is so similar to hyper-joint mobilitiy syndrome; though I do have most of the symptoms)

346: The Love I Am (A review of emotions, joy, fear, and pain)

I remember sitting on my bed in my early twenties and realizing with a sudden revelation that I did not know how to feel joy. In fact, in analysis, I concluded then that in the past several years I had not recognized many emotions. Generally I felt anxious, nervous, over-concerned, shy, out-of-place, insecure, depressed, sad, and worried. That was all I could feel. I could not feel anger. I could not feel love. My feelings for my significant other were all wrapped around fear of abandonment. I could feel fear.

I went from extreme emotional highs to extreme lows. I now believe this was not biologically induced. I think I made myself purposely cycle through thought-processes. If I was not extremely high (overly-anxious, overly-obsessed, overly-concerned), I was extremely low (unable to leave the house, fatigued, depressed). There wasn’t a manic high of joy, elation, grandiose thoughts, and magical-viewing of the environment and self. In the high-state there was only this inability to let go of fear, which led me to act out (OCD-like behavior, rituals, non-stop analysis) in order to eliminate thoughts. In the low-state there was the same inability to let go of fear, but my efforts to eliminate the thoughts were displayed through withdrawing, sleeping, and retreat.

I still go through these same states. Though I now know what the middle ground of emotions feels like. I think I “make” myself go through these states in an attempt to feel joy. I used to only feel joy when I was transitioning from one state (low) to the other (high). And even then, only for a fleeting moment.

In the past, and at this moment, I cannot experience this sensation of fleeting joy/happiness without the anxiety tagging along and questioning me, like some annoying tailgating friend I attempted to shake of millions of times before: “Are you sure you’re happy? Is this happiness? Will it last? How do you know it is happiness? Why are you happy? Are you being selfish? Is this self-based?”

My being seems incapable of holding onto this type of joy, and joy alone. This joy has to have companions of suspicion, dread, over-analysis, and such. And I utilize the word “have” because that is how the experience registers for me.

In the same line of thought, my extreme lows which include the inability to move, the discomfort of being me, and the fatigue of simply thinking, comes too with a posse of entities—emotions garbed as “why again,” “what is happening,” “why can’t I control my own self.”

This doesn’t feel like a mood disorder to me, though I see how my behaviors, and possibly thoughts, would present themselves as so. To me, this teeter-tottering is always pinpointed to an exact spot of awakening to the highest step of anxiety or lowest step of deep sorrow. I can find a reason. I can in retrospect see where I was switched from one extreme to the other.

Typically, I feel the mixture of joy and dread when I have 1) Accomplished a goal that I was afraid I would never accomplish; 2) Accomplished a goal in which I was fixated from the start and glad to be done; 3) Completed something I was dreading for days; 4) Received good news after worrying about bad news; 5) Received a compliment about my appearance, as I am insecure about the way I physically look.

In review, each of these supposed “joys” is accompanied by a fear or “negative aspect.” For example, in number one, “I was afraid,” and in number two “I was fixated.”

For a long time, this was the only way I could feel sporadic spurts of mixed joy: by attaching a fear or negative aspect, and then with some stimuli (another person, place, thing, event, words) the negative aspect is momentarily released and that moment of release feels to me akin to joy. For me, when the negative aspect I placed on self is temporarily removed, joy steps in.

In fact, in my mind, and in my scenario of feeling, I cannot feel this type of joy without first attaching an element of “negativity” and/or “fear.”

In contrast, in my moments of fear, in my low state, I have attached hope or the “best case scenario.” I create in my mind the release, the escape, or the rescue and I wait. I set myself in a cage, much akin to a prison, where I’ve locked myself away in darkness, and then wait. What I am waiting for is the removal of deep pain, and I have decided, somewhere deep in my mind or spirit that this removal will only happen in a specific way. For example, in sighting past experiences, this might be, this release of pain through the removal of a stimuli: an illness going away, a person coming and going, a meeting passing, a phone call received.

Here seems to be the tipping point, or the starting point of where my fleeting joy begins. While I sit readily in this cage of misery, I am creating the future of joy I hope to see. Whilst worrying immensely in a non-stoppable way and running through all the possibilities and strings of variable outcomes I can, I am in a direct way preparing to feel release and joy in the near future. This is to me, seemingly like a junkie in need of an adrenaline high. I am making myself increasingly low, so when the event or stimuli arises that apparently lifts me from outside of my self-inflicted prison, I am brought to a state of infinite fleeting freedom. In extreme emotion, I am brought high above myself and able to at last feel beyond suffering. I am creating my own high.

It is only in the in between state, between the middle part of prison and the freedom of elation that I feel the fleeting joy. I quickly rise past the joy to the state of high-anxiety, as the doubts and questioning sets in. This is why, after much processing about a possible scenario that could lead to my demise, failure, rejection or the lot, I will appear momentarily elated with relief when the scenario does not turn out in the thousand terrible ways I thought, but then I will quickly switch of the invented and created false feeling of joy and question my emotion. This will then put me in a state of shutdown, where I am wondering why I worried to the degree of physical and emotional, even spiritual ache, for the gift of fleeting fake joy brought on by a self-invented high.

Is this indeed a process I have created in an attempt to feel human? In an attempt to feel what “I am supposed to feel?” Am I lacking something or some chemical? I don’t think so.

I think this is the way my mind works itself out of confusion, in an attempt to unravel all the thoughts that are bombarding me, including all the stimuli, constant awareness, and confusion. I think this is my mind’s way of putting me into protection. I think in my cell of worry is the only time I feel safe from the world. To me, the fear-state is more liken to protection and safety than the joy state. For joy crashes and fear remains. Fear is predictable and stays with me as I loop and over-think; joy emerges as this falsehood and leaves me abandoned.

Do I like the cell perhaps more than I acknowledge? Is the cell the darkness I need to retreat to in order to renew? Am I, like the caterpillar, in need of continual metamorphoses? And if I am turning into a butterfly from the retreat out of darkness then why do my wings suddenly disappear?

In living, I have gained some recognition of middle emotions, the more subtle emotions of: satisfaction, contentment, serenity, connection, gentle-anticipation; but as these subtle emotions surface and are identified, I analyze where they have come from. I wonder which came first, my own thought, or the emotion; and often conclude my thought brought this emotion; and then I go into a place of deep thinking of when and where this thought came into existence that caused this emotion, and if this is indeed an emotion I welcome; and if this emotion comes from a place of selflessness, ego-release, and love. If the emotion/thought, both spun out together with thought in a slight lead, are not from a place of benefit for me and others, I then review why I have created these non-beneficial thoughts.

Where before for four-decades I was highly unaware of my own thoughts and emotions, and felt numb to the world, unless in a place of extreme anxiety or extreme low, now I am highly-aware of my experience, each moment analyzing and questioning my experience here, in this place I have been told isn’t really here at all. I have fed myself with so much factual data, through various sources and through moments of awakenings, that I cannot help but to try to place my own emotional/thought experience into a category.

My mind categorizes. I was built, I believe to a degree, to sort and categorize, to circumvent my emotional wiring and dig beneath and pull out what is occurring. I am a computer analyzing the computer-self. The mind boggles and I am left, wishing to do nothing but to be simple in the extreme, to wash away the complexity and start again anew and refreshed.

In an attempt to pull myself out of myself, I continually study and analyze, not just words and visual sources, but thoughts and happenings. I analyze the trees, the sky, the movement of all, even the invisible and untouchable. I analyze because I am attempting to take the moment I am set free from prison, to capture that fleeting flicker, and rise with this moment in true form of butterfly.

The dilemma is in finding myself lost in self, and reviewing the past data (Eastern philosophies of escape from mind), and then trying to understand this absence of thought, as I am built to a degree where the past ways of transcending (absence of thought; deep meditation in silence of mind) and completing the process of thought (silence and retreat after reflection) are foreign. I seem incapable of mastering my own mind enough to sit in the stillness of release. My brain appears so high-powered by some high-force that I am suited best for the prison of darkness as my retreat.

But there is hope, always hope.

And this hope is found in one way.

I have been able to at last find rescue from my own self in the act of giving of self. When I come from a place of pure intention to give without recognition or reward, I am set free. This is where the butterfly is meant to fly.

What I have been doing for so long is releasing myself from the cage and giving myself the imagined joy. I have been trying to hold onto a joy for self, and to build up self with joy, as this is what has been demonstrated by society: to make myself happy; to be happy; to find happiness. But this is not right; at least not my right, if right was to be.

I am not put here to make myself happy. I don’t need to be happy. Innately, beneath this façade of thoughts that generates a façade of emotions, I am happy. And I know this. I am not confused by self. I am confused by the thoughts and emotions, because beneath I am a spirit having a human experience. But my suit, my human suit is not adjusted, it is open enough so that the experience of human is confusing, debilitating, and disconcerting; I have spent eons, or what appears eons, trying to master my thoughts and emotions, when the freedom is not found in mastery of the invisible and illusion: mastery is found in the release of this humanness.

There is no direct way to self, as I am already self. There is no direct way to free myself of thoughts and emotions, as they do not even exist. They are not real.

Yes, I feel. Yes, I experience. But ultimately after a lifetime of analyzing my own experience, I see the illusion I have created. And though I stand in a lonely place at times, in reality, in my reality, I am finally able to grasp joy, and this joy is not fleeting. This joy does not bring out invisible scissors that eventually clip and remove my wings. I do not bleed from this joy, nor do I suffer.

I am attuning self enough to know that false joy will not last, and thusly this false, self-created, and self-wanting joy feels poisonous to me. I want to spit the falsehood out, and bring out the reinforcement of armies with swords in hand and slice away at false joy with question. I feel attacked when the questions come, when the illusion of joy is destroyed, but I am not attacking anything but illusion upon illusion. I am not attacking anything but selfish want and selfish joy.

Joy to me is only found in giving. This is my place of joy. This is how I am wired. I have been trying to live like the rest say to live, to fill myself in order to be fulfilled. But I am ultimately fulfilled when another is fulfilled. I am filled when I am able to bring joy to another. I am filled when the love I have for another is received. I am filled when I know in my deepest knowing that I am not wanting for self and self alone. There is no way around this for me. I still take comfort in the fineries of good food, decorative clothes, and good friends; these can bring me happiness. But this is not a happiness that stays. I see this. I recognize this. And thusly, my mind creates a stage of battles, where I am once again made supposed victim as the questions slice away at the supposed joy. But I am no less victim than the tree pecked by the woodpecker. I am made home for the world, for the flying birds, when I am carved out and hollowed. And in this place, when the world slips inside of me for shelter, I am joy.

And so it is my journey begins with intention. If I set out to love the world, to give of myself freely, without motive for self, then I shall receive endless abundance and joy that I can time and time again return to and tap into. This joy might waver with the wavering of my thoughts and emotions, but this joy is there always. This joy is always there. This joy is love of others, and in so loving other, love of self. There is no non-benefit to giving and loving freely. There just isn’t. When I come from a place of love, I am free. When I do not, I am imprisoned. There is no other place for me than from a place of love.

I think now that I was made the way I am to force myself into finding love. Here I have been searching to love myself, to change myself, to change my thoughts and emotions, to change my way of being, when all along the key was so very simple: love.

Here I was searching to understand love, to understand love through ownership and misinterpretation, and needing and wanting, and sometimes constant desiring, but that is not love. Love is not found in the one or in the self. Love is not found through the desire to receive. Love is not fleeting. And so often the love I have thought I have found, though unrecognizable, unidentifiable, and uncomfortable, still did not fit. No matter how hard I tried to make love fit, it did not. That is because I was searching for a suit of love for me, something to wear to soothe and protect the suffering beneath. But garments age; they tear, they break; no matter what we do they disintegrate, they become outdated, they eventually stink. The only love that can complete me must be outside the self and unattached from the self, something so immense and immeasurable that fear escapes in the infinite abundance.

I know now how to be happy.

Happiness is found in the detachment of love from self, so that love may fly freely. For it is not the butterfly I am that needs to find and wear her wings, it is the love I am that needs to soar.